HEADS UP! 2: A qualitative CBR study to describe service experiences of HIV positive people living with neurocognitive difficulties and disorders and the providers of those services
2019 - 2020
Chan Carusone, Soo ; Ibanez-Carrasco, Francisco ; Rourke, Sean B. ; Worthington, Catherine Anne
Our goals in the HEADS UP! 2 study are to use CBR methods to examine the experiences of up to 60 persons living with HIV concerned with cognitive functioning and their caregivers in 3 sites (ON, AB, BC), as well as the perspectives and experiences of 16 clinical and community-based service providers on delivering care to PHAs (in ON, AB, BC, QB) with neurocognitive issues. We seek full engagement and capacity-building for all team members, including a group of peer research associates (PRAs) who will contribute to the team through study design, data analysis, and knowledge transfer and exchange. Ultimately, our aim is to collaboratively develop tools to support PHAs to seek care for cognitive concerns, assist them with (brain) health promoting strategies, improve awareness among health care professionals about HIV neurocognitive issues and HAND, and improve neurocognitive services for PHAs, Our team includes PHAs, clinicians and researchers from the HEADS UP! 1 study, and new partners, including those from ACB and Indigenous communities, as well as international partners, all of whom recognize the importance of this issue for people living and aging with HIV.
Purpose and Objectives:
Start and End Date:
2019 - 2020